No Ordinary Campaign

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In 2017, Brian Wallach and his wife Sandra Abrevaya’s lives drastically changed. Shortly after welcoming their newborn daughter, Brian received a devastating diagnosis of ALS, with doctors giving him roughly six months to live. Once a power couple working for the Obama Administration, the two now faced the anxieties of what Brian’s diagnosis would mean for their family. Their concerns grew as they realized they must navigate the diagnosis within a healthcare system plagued by apathetic doctors and exploitative non-profits.

Six years later, this determined couple, unwilling to surrender their family to despair, has taken their battle to Washington, D.C., where they advocate for the millions of patients seeking a voice amidst a crumbling healthcare system. No Ordinary Campaign chronicles one couple’s efforts to spark a healthcare revolution, demonstrating that victory can be achieved even when the odds seem insurmountable.

Introduction by Dr. Lawrence Phillips (UVA Health).

Discussion with director Chris Burke, Andrea Goodman (I AM ALS),
Jim Plews-Ogan, MD (Hummingbird Fund), and Ian H. Solomon (UVA).
Moderated by Justin Mutter (UVA).

Date

Sun, Oct 29, 2023

Time

2:00 PM

Location

Culbreth Theatre

Film Info

Director: Christopher Burke

Runtime: 82 min.

Genre: Documentaries

Year: 2023

Country: USA

Language: English

Speakers

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Ian H. Solomon is the current Dean of UVA’s Batten School and former U.S. Executive Director at the World Bank. He served in the Senate as legislative counsel to then-Senator Barack Obama.

Jim Plews-Ogan Headshot

Jim Plews-Ogan is a retired pediatrician and Emeritus Associate Professor at UVA. An ALS patient himself, he is a founder of The Hummingbird Fund.

Chris Burke Headshot

A veteran of documentary, TV, and commercial production across genres, Chris won an Emmy for directing PBS’s Bloody Thursday.

Andrea Goodman Headshot

Andrea Goodman is a public health leader and patient advocate. She is the CEO of I AM ALS, which focuses on developing treatments and cures for ALS.

Presented by

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Haney Conference for Compassionate Care at the End of Life

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